Patient Reported Outcomes, Burdens, and Experiences (PROBE)

PROBE is a patient reported outcome tool that measures the impact of hemophilia on daily life. It is meant to support access to optimal care. PROBE was developed for patients by patients, in collaboration with health research methodologists. It is being used for comparative effectiveness, outcome research, evidence based decision making, advocacy, and in everyday clinical practice. 

For more information, visit the PROBE Study site or click here to contact us via email.

To participate in the study, you can visit the myPROBE website HERE or download the myPROBE App by clicking one of the following.