Canadian Bleeding Disorder Registry (CBDR)

Canadian Bleeding Disorder Registry (CBDR) is Canada’s national database of patients with inherited bleeding disorders. CBDR has a clinical interface available at CBDR and a bilingual patient interface (MyCBDR and Mon-RCTC) available at myCBDR. CBDR is implemented in  23 Hemophilia Treatment Centers in Canada.  CBDR owned by Association of Hemophilia Clinic Directors of Canada (AHCDC) and is funded by public funds provided by Provinces and Territories (P&T) via Canadian Blood Services (CBS) and for Quebec by Ministère de la Santé et des services sociaux. McMaster University via Health Information Research Unit (HIRU) hosts the centralized database and  manages the day to day activities of the registry.  The research division of CBDR (CBDR-R) developed by HIRU and funded on cost recovery basis ongoing studies powers purpose approved data aggregation and prospective data collection for registry based studies through a customisable interface.

CBDR is designed to be used on a daily basis by clinicians in all Canadian HTC’s (Hemophilia Treatment Centers) to assist in managing the treatment of people with bleeding disorders and to gain a better understanding of the incidence and prevalence of bleeding disorders. This information will also be used to understand demand for, and to facilitate ordering of clotting factor products.

MyCBDR is also accessible via smart phone apps on Google and iOS platforms, bilingually. Click one below to download.